Clinical Services Archives - Page 4 of 7 - East Cheshire Hospice

East Cheshire Hospice’s first cohort of Live Well Feel Well group

Live Well Feel Well – an appropriate name for the newest support group set up by East Cheshire Hospice.

Seven cancer patients attended the inaugural six-week course at the charity’s Sunflower Wellbeing Centre.

Among them was Anita Kidd, who was diagnosed with a rare form of lung cancer in March 2020.

Anita said: “We are all at different stages of our various types of cancer. We’ve also undergone various treatments from surgery, chemotherapy, radiotherapy and research trials.

“The group on our course talked through difficult conversations, including planning for the future and how they want to plan funerals.

“This includes pre-booking them and leaving very clear instructions, to take the pressure off family members.

“We even talked about having a wake for friends and relatives to attend and enjoy while we are still alive and can be part of it.

The Live Well Feel Well group with staff from East Cheshire Hospice. From left, Sunflower Wellbeing Centre manager Helen Henshaw; staff nurse Joan-Marie Williams; John Mayer, Sue Horobin, Anita Kidd, Graham Crewe, Sunflower clinical co-ordinator Tracey Pearce and staff nurse Victoria Sayers.

“The course was about giving us strategies to cope. The weekly themes included exercise and how to look and feel good. We also talked about managing fatigue and perceptions of cancer.

“The course is also about building peer support, so those in similar situations can talk. We’ve now set up a WhatsApp group and will meet up again.

“The group was about safe spaces, support to live well with cancer and enjoying returning to work, hobbies and making memories.”

Anita’s cancer is adenoid cystic carcinoma of the trachea, which means she has limited options for treatment. Thanks to research she is undergoing targeted drug therapy.

She said: “The Sunflower Wellbeing Centre is so pro-active. It’s safe, supports you and can signpost you. They have amazing facilities, with complementary therapy services, including arts and counselling.

“These courses show the Hospice in a different light, bringing together groups of people to feel safe and valued.

“We had conversations we wouldn’t have with our partners. It is also about recognising that some days are just bad days and you’re not the only one having a bad day, but that’s also okay.”

“Part of our feedback to the Hospice is that it would be useful to have a space there for a drop-in session to catch up.”

The second six-week Live Well Feel Well course is under way for anyone with a life-limiting illness.

Participants can self-refer, or be referred by a health care professional. Sessions are between 1.30 and 4 pm on Thursdays.

Sunflower Centre Live Well Feel Well update

Staff and patients hailed the success of the first Live Well Feel Well course run by East Cheshire Hospice.

It took place at the Sunflower Wellbeing Centre, which is now back to normal after Covid restricted day care activities.

Clinical co-ordinator Tracey Pearce said: “It’s great to be fully up and running again with a full programme. We have something on every day.

“We still delivered our programmes via Zoom during Covid and kept in touch with our patients, but it’s just so nice to have people back in the building.”

Tracey said: “The first two Live Well Feel Well courses have predominantly been cancer patients, but they’re open to anyone with a life-limiting illness. The courses run back-to-back.

“The first course went brilliantly and couldn’t have gone any better. Participants formed an amazing bond. Sessions are partly about peer support and encouraging open conversations.

“Live Well Feel Well is a revamped format of our old Living Well programme, but these are shorter and more intense.

Sunflower Wellbeing Centre clinical co-ordinator Tracey Pearce.

“We think we’ve come up with a winning formula and the first group tend to agree.”

The Hospice linked up with Look Good Feel Better, a charity which ran a session on make-up and skin care.

Tracey said: “This part of the course wasn’t just for the women. We had a separate session for men about looking after skin, which can get sensitive during cancer treatments.”

* To find out more call the Sunflower Wellbeing Centre on 01625 665685.

Dementia services at East Cheshire Hospice

A range of dementia care services are available to East Cheshire Hospice patients.

They include one-to-one sessions, either at the Hospice or at home, if appropriate.

Admiral Nurse Debbie Callow said: “Generally we pick up on people who come to the Hospice and need more attention.

“This could be on the ward, via the Hospice @Home service, or through our dementia activities. We identify if those diagnosed, or the carer, needs additional support.”

An eight-week well-being programme for carers, which began in 2015, is popular. Topics include understanding dementia, benefits, legal aspects, stress, diet and nutrition and community support.

East Cheshire Hospice offers a range of dementia services.

The Hospice also has a companion service. Trained volunteers take out a patient for a couple of hours, giving carers vital respite.

Monthly singing groups, featuring live entertainment and dancing, are always well attended. Debbie said: “Someone may be losing their ability to have a conversation and forgetting certain words, but put a song on and they can remember all the words.

“That’s because the brain remembers anything with rhythm differently to everyday language. Singing helps trigger memories.”

Another activity is Love to Move, a seated exercise for over 55s described as ‘brain gymnastics.’ It improves communication, mobility, stamina and well-being.

Dementia nurse Paul Dale said: “To access Hospice services someone needs a diagnosis. They can either self-refer, or be referred by a health care professional.

“The most common symptoms are short-term memory loss, personality changes and language difficulties.”

* For general inquiries contact the Hospice dementia team on 01625 666990.

Dementia team at East Cheshire Hospice

East Cheshire Hospice has strengthened its dementia team to cope with increasing demand.

Experienced mental health specialist Paul Dale has joined as a dementia nurse, enabling the charity to offer extra support to patients.

The Hospice set up its own dedicated dementia service in 2019, with Admiral Nurse Debbie Callow appointed as lead.

Paul Dale and Debbie Callow, the East Cheshire Hospice dementia team.

The illness affects 5,730 people over the age of 65 in Cheshire East, according to the NHS.

The region has a higher percentage of elderly people than anywhere in the country – 18 per cent compared to 16 elsewhere.

Covid delayed Hospice plans to expand dementia care, but with services back to normal it is now hoping to build on them.

 

Debbie said: “We’ve many ideas how we can expand and help even more people, subject to funding.

“These include taking our services out into communities and making them more accessible, so people don’t always have to come to the Hospice.”

Growing demand for Hospice dementia services illustrates the scale of the problem, explaining why the charity wants to do more.

Debbie said: “People are living longer so there’s more likelihood of developing dementia, although you can still get it when you’re younger.

“Awareness is improving and people are more willing to go to the doctors. Medical advances mean there are now cures for some other illnesses, but sadly not yet for dementia.

“Dementia is playing catch up compared to cancer, with care about 20 years behind cancer care in terms of research and support.”

The Hospice has the country’s senior expert on dementia, Professor Alistair Burns CBE, as a Patron. Prof Burns, formerly of Macclesfield, is the National Clinical Director for Dementia and Older People’s Mental Health at NHS England and NHS Improvement.

Hospice patron Professor Alistair Burns CBE.

Debbie said: “I know Prof Burns was quite impressed when he first came on board with what we were already doing.

“In terms of hospice care for dementia, I do feel like East Cheshire is leading the way and having someone at such a high level has helped give us a push.”

Paul has spent more than three decades working in mental health care, mostly in East Cheshire.

He said: “I referred patients to the Hospice in my previous role, so was already aware of its programmes and services.

Hospice @Home Nurses share their stories

Going into homes caring for dying patients can be tough.

But it is also highly rewarding, as Hospice @Home nurses at East Cheshire Hospice know so well.

As the service reaches its fifth anniversary, staff have spoken at their pride helping patients at the most precious moment of their life.

Hospice @Home staff (from left) Sally Heaven, Helen Singleton and Gill Tomlinson.

Rapid response nurse Helen Singleton has been visiting homes since the start.

She said: “On that first day five years ago we hit the floor running. We were asked to go to a village I’d never heard of. Within two visits, we had got the patient safe and comfortable and the daughter was relieved.

“Dying is not easy. There is discomfort and there may be pain.

“Carers can be physically and emotionally exhausted, even traumatised. They may feel lonely and isolated and the household becomes chaotic.

“These are the reasons Hospice @Home exists. We endeavour to address all these difficulties, alongside our NHS and social care provider colleagues.”

Helen and colleagues use one of three Hospice cars which have made more than 14,000 home visits, day and night.

She said: “At 3 am on my last shift just by listening, we enabled a couple to make a difficult decision at home. Within a few hours, their wishes had been acted upon and the patient opted to go into the Hospice.

“Like all endeavours we’ve had our ups and downs, but we’ve managed to overcome the downs and have built on the ups. From a small team, we’re now a large team of 25, providing a wonderful array of services round the clock.

“We’ve fostered respect and co-operation with other services and as a hub for East Cheshire we’re a major focus for palliative care provision.

“We couldn’t have done this without our supporters and the donation of the cars has been much appreciated.”

Helen’s comments are echoed by colleagues, some of whom have raised funds for a service they are all passionate about.

Health care assistant Elaine Taylor had her head shaved. She said: “The job is so rewarding. It’s a privilege caring for patients at end-of-life.

“We get lovely messages from families when relatives have passed away, saying they couldn’t have coped without us.”

The service has helped over 1,000 people to die in their preferred place of death, either at home, or in the Hospice. Initially covering weekends and nights, it was extended to 24 hours in 2020.

Hospice @Home celebrate its 5th Anniversary

Caring for patients in the comfort of their own home was started by East Cheshire Hospice five years ago this month.

Its Hospice @Home service has been an overwhelming success during that time, expanding greatly to meet the needs of the community.

An initial team of six has grown to more than 25, including nurses, health care assistants, co-ordinators and bank staff. Home visits are made in cars painted in blue Hospice colours.

From left, Hospice @Home clinical co-ordinator Gill Tomlinson, manager Tess Cleaver and health care assistant Joanne Helm.

Figures show that since October 2017 staff have –

* Received 1,830 referrals.

* Made 14,400 home visits.

* Helped 1,028 people to die in their preferred place of death, either at home, or in the Hospice.

* Taken 1,107 SOS phone calls from users, possibly avoiding call-outs, ambulance visits, or hospital admissions.

* Made 6,036 planned phone calls to users, saving similar trips.

* Made 150 night sits.

Hospice @Home began as an out-of-hours rapid response service for patients in the last two weeks of life, later extended to 12 weeks.

It supported patients overnight and at weekends where access to health care professionals was limited. It also offered ad hoc care for patients with little or no package of care wishing to stay at home as long as possible.

A gap in regular care provision was identified in certain places, often due to locality and availability of care agencies in those areas.

That led to a day service, beginning in April 2020, providing high quality packages of care to patients rapidly deteriorating and thought to be entering a terminal phase.

Staffing levels were increased significantly to provide this round-the-clock service.

Meanwhile, carer breaks were introduced in January 2021, giving respite for carers of loved ones in the last six months of life.

Fifth birthday celebrations for the Hospice @Home service. Manager Tess Cleaver (left) with clinical co-ordinator Gill Tomlinson.

The Hospice is also now the East Cheshire hub for Palliative Care in Partnership, assessing patient suitability for community-based fast track care applications.

Since April, this hub project has provided night care in collaboration with Marie Curie, with an average of five night sits a week.

Hospice @Home Manager Tess Cleaver said: “I’m proud of what our exceptional team have achieved over the last five years. Everyone is so invested in providing excellent care tailored to each individual.

“Importantly, we’re part of a much wider healthcare network and close co-ordination with other community services is vital. We strive to provide high quality care and always learn from feedback to further improve our services.”

Elaine completes her head shave for East Cheshire Hospice

Elaine Taylor kept her promise to get her head shaved as a show of support for East Cheshire Hospice patients.

One patient in particular who had lost all her hair inspired Elaine, a health care assistant, to face the chop at the hairdressers.

Daughter Jade and daughter-in-law Lorri Taylor were there to witness the big moment.

Elaine, who is part of the Hospice @Home team, said: “I was nervous before and didn’t know what to expect. It was emotional because of why I was doing it and the meaning behind it.

Before…..Elaine Taylor preparing for her head shave.

“It felt liberating and was a bizarre feeling. I didn’t think I’d feel quite as good as I did when I came out.

“My partner Steve O’Neill was pleasantly surprised and said it really suited me. I went into the Hospice to show my colleagues and they were also blown away by it.

“Our dog Eva didn’t flinch when she saw my new look and just wagged her tail.

“I’ve had a lot of support from people at work who understand why I’ve done it because of the patients we care for.

After ….Elaine is congratulated by daughter Jade.

“One lady I’d cared for of similar age, with children and a dog like me, had quite an effect on me. Sadly, she didn’t have any choice whether she lost her hair.

“I love my job and can’t imagine doing anything else.”

Elaine has easily beaten her initial fundraising target, raising more than £1,700 so far.

*  To support Elaine visit www.justgiving.com/fundraising/Elaine-Taylor40

Alison takes to the skies for East Cheshire Hospice

The bravery shown by her patients will act as a spur for Alison Arnold when she faces her own fears.

Alison will join other daredevils in a wing walk in aid of East Cheshire Hospice where she is a health care assistant.

Alison joins two other Hospice @Home team colleagues inspired to get involved with fundraising activities by the courage shown by the patients they visit.

Jo Helm undertakes a Sahara trek later this year, while Elaine Taylor is having a sponsored head shave.

Seeing how patients and their families cope with the challenges at end-of-life, supported by the Hospice, motivated them.

Alison, who joined the Hospice in January, said: “I’d worked in the community a lot with vulnerable people in different kinds of roles, but never with those at end-of-life.

“I just instantly connected with patients, realising that not long into my second week.

“Until then I’d always been a little bit frightened about death and when my dad Peter passed away in 2017, I didn’t understand the different stages he was going through with his cancer.

“There was no-one there explaining it to me, so wasn’t able to make such a good connection with him towards the end of his life.

“When I started working at the Hospice I was absolutely blown away by the dignity and respect paid to people at end-of-life and how we support them to have a good death.

“I just feel really proud to be working for the Hospice. It’s a privilege and humbling.

“Working with such caring and compassionate people, I felt settled the minute I entered the Hospice so it was important to me to try to do something.”

Alison Arnold who is part of the Hospice @Home team which goes out to visit patients.

Friend John Mycoe will be there to see Alison sit on top of a 1940s Boeing Stearman biplane over a  Gloucestershire airfield on July 11.

Alison said: “I’ve a fear of heights, so the first challenge for me is getting up the ladder to climb on to the plane.

“I’ve seen frightened patients facing their fears head-on in the latter stages of life and can’t know what that’s like, but this is my way of connecting with fear and trying to overcome it.

“I’m very cautious – the most daring thing I’ve done is climb Mam Tor. Colleagues who’ve done the wing walk said it’s a wonderful experience and I won’t regret it.”

* To sponsor Alison visit justgiving.com/fundraising/alison-arnold19

Toni’s Hospice Journey

A bride’s wedding day is always special, but for Toni Walsh it was an even more emotional occasion.

She knew her husband Tim Longden had only days left to live.

The Macclesfield couple were married at East Cheshire Hospice in February 2020, weeks after Tim had been diagnosed with a brain tumour.

They had been together for 12 years, having known each other for 20 years.

Toni popped the question while Tim lay in a hospital bed, just before he was told nothing more could be done.

Tim was transferred to the Hospice where the chaplain made wedding arrangements for the following day.

A social media appeal for help to make their day special prompted a flood of donations.

Tim and Toni on their wedding day.

Toni said: “The support from the community was overwhelming. It was absolutely amazing. I had six offers of wedding dresses and two people stayed up all night making wedding cakes.

“We were supplied with a buffet and I had my hair and make-up done. Tim couldn’t walk by then so they wheeled him into the chapel for our blessing.

“Our wedding was on the same day as my mum Kath’s birthday and she’d died the year before aged 64.

“It was a lovely day under the circumstances.  Tim hadn’t really got any symptoms before. He’d just started missing words and slurring his speech and thought he might have had a stroke.

“He managed to say his name and ‘I do’ and was aware what was happening. Then, unfortunately, he went downhill and died 12 days later.”

The couple worked for BT for many years and after Tim’s death at the age of 50, Toni left to volunteer at the Hospice’s charity shop in Poynton.

She is now assistant manager at its Thornton Square store where customers have generously donated in a bucket for a fundraising challenge.

Toni at Thornton Square charity shop where she is assistant manager.

Toni, with Tim’s sister Rachel Richards and her husband Mark, are trekking across the Sahara in November in a Hospice event.

Toni said: “We’re calling ourselves The Three Camels. I’m so unfit and it’s a massive task for me in the heat, but it’ll be an amazing experience in Tim’s memory and I want to give something back to the Hospice.

“The support I’ve had in the shop has been incredible and I can’t thank the community enough for the spirit and love shown two years ago and ever since.”

Toni Walsh with in-laws Rachel and Mark Richards. 

 

*To sponsor them visit www.justgiving.com/team/wwwjustgivingcomfundraisingThree-camels

Moneybox help and encourage during Dying Matters Week

A free monthly legal clinic is one way East Cheshire Hospice helps patients and families prepare for the future.

Advice on making a Will is among topics covered by Moneybox Wills and Trusts, Thorneycroft, Dunkerley and GPW Trusts, the four companies supporting the initiative.

The half-hour advice sessions are available between 11 am and 1 pm every second Friday of the month at the Hospice.

To register for the next clinic on May 13 call 01625 665685, or email dcoffice@echospice.org.uk.

During Dying Matters Week, Joe Etherington, Head of Wills and Trusts at Bollington-based Moneybox, is encouraging  people to consider making a Will.

Joe Etherington outside the Moneybox Wills and Trusts offices in Bollington.

Joe said: “It’s important people get qualified advice as there are so many misunderstandings, myths and out-of-date ideas.

“There’s a shift towards people being more open about making a Will, but not enough of one. That resistance over speaking about Wills is partly because people are unwilling to face their own mortality.

“They think if it’s 40 years away, why bother now? Half still don’t realise the law decides what happens to their possessions when they die and they think their family can deal with it.

“A lot have a second relationship now and don’t realise until making a new Will that in getting re-married they may have accidentally disinherited their children.”

Will Week each October sees solicitors waive fees in lieu of a donation to the Hospice. East Cheshire also encourages families and patients to plan for their future through its bereavement and Sunflower Centre services.

Find out more about Dying Matters Awareness Week.