Prolific fundraiser Kevin Sinfield OBE has backed East Cheshire Hospice’s latest venture.

 

The former Rugby League star sent a goodwill video message to fundraisers at an inaugural event to raise awareness of motor neurone disease.

 

The special MND day at Macclesfield Rugby Club raised almost £4,000, with proceeds shared between the MND Association and the Hospice.

 

Supporters completed laps of the car park on wheels, an idea inspired by carer Jan Gates and implemented by Hospice senior physiotherapist Natalie Nye who organised the pilot event along with colleague Jill Harding.

 

Jan, whose husband Mike has MND, attends popular monthly support meetings which have been at the Hospice since 2017 and are led by a team of health professionals from there.

 

Jill, a health care assistant, said: “Considering the progressive  nature of the disease, those who attend our MND Wellbeing Days are the most upbeat positive people you could ever wish to meet and they’ll usually find a reason to laugh about something during the session.

 

“They’re a unique group of people and I can’t pay them a big enough compliment.”

 

Patients and carers are invited to attend the monthly Wellbeing sessions where a topic is discussed each time.

 

Subjects range from managing fatigue, advice about sleep and relaxation, advanced care planning, aids to communication and travel help.

 

Carers access peer support in a separate room and both patients and their carer can enjoy a relaxing complementary therapy during the sessions which are supported by volunteers including trained visitors from the MND Association.

 

Jill said: “It was about raising awareness of MND in collaboration with the Hospice. We couldn’t hold it there because of ongoing refurbishment work at the Sunflower Wellbeing Centre and Jan had the idea of patients and relatives doing laps using wheels as a mode of transport.

 

“We had wheelchairs, wheelbarrows, scooters and bikes and everyone joined in the spirit of the occasion for two great causes. The rugby club were brilliant hosts and we plan to make it an even bigger event next year.”

 

Natalie and Jill dressed as sunflowers to represent the Hospice emblem and volunteered for an ice bucket challenge in lieu of a minimum £50 charity donation. Prizes were donated and cake sales boosted the fundraising total.

 

* To find out more about the MND Wellbeing Programme at the Hospice contact Natalie Nye at nnye@echospice.org.uk.